The name's Christie Reyna. Living life in Mrs.Sauga. Very Blessed with gifts from God.

Here's 10 quick facts about me:
1. I'm Catholic. God's always my number one ❤
2. I have a widdo angel named MJ Maryjane Reyna, she was my dog for nine years.
3. I can't go through a day without playing the piano, dancing, singing, or playing the guitar.
4. I always smile, it's rare to see me upset.
5. I hate seeing other people upset, and I would do anything just to make their day.
6. Many people have hurt me in the past, but they've help me grow, so I thank them instead of hating them.
7. I'm currently in love.
8. I loooooove playing volleyball.
9. I love wearing dresses (:
10. Last but not least, my family means the world to me, so don't hurt them.

I'm something else. So give me a chance and take me as I am or watch me as I go.

(Source: epic-vines, via thinkttwice)

Notes
74064
Posted
1 week ago
My Parents are Dead and My Sister is Disabled →

congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

image 

Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

(Source: , via pambutt)

Notes
192227
Posted
1 week ago

tyleroakley:

random-clarity:

theoddoneouut:

ellosteph:

A game of Never Have I Ever that takes a twist, and will leave you with chills at the end. 

that is not what i expected, woah

I thought this would be fun, but I got bitch slapped with life

watch and learn

Notes
89245
Posted
1 week ago

xcarolynnn:

cloudydayrealestate:

the satisfaction

One time in like 5th grade I had this teacher and she gave us all bottles of shit like this and told us to squeeze it all out and of course we were like fuck yeah and did it and then she said, “Now, try and shove it all back in the container.” Of course we all tried, and then stared at her confused as shit. When we all obviously gave up, she said, “In the moment, you were so consumed with what you were doing that you didn’t realize the mess you were making. Then, after it was so quickly and easily poured out, you realize it is impossible to put it all back in. Remember this for the rest of your lives when it comes to the words that come out of your mouth” and we were like 10 so we were like yeah ok whatever lady, but somehow to this day I think of it constantly. 

(Source: officialkirstie, via only20seconds-insane-courage)

Notes
452081
Posted
2 months ago
of-ambivalence:

aphoticamy:


consulting-meerkat:


iheartkissingboys:


Pro-Gay religious counter-protesters at Atlanta Pride.


IT IS AGAINST MY RELIGION TO HATE.
PUT THAT ON A SHIRT.


Christianity: doing it correctly


Real Christians are legitimately good people. 

of-ambivalence:

aphoticamy:

consulting-meerkat:

iheartkissingboys:

Pro-Gay religious counter-protesters at Atlanta Pride.

IT IS AGAINST MY RELIGION TO HATE.

PUT THAT ON A SHIRT.

Christianity: doing it correctly

Real Christians are legitimately good people. 

(via thinkttwice)

Notes
417278
Posted
2 months ago

10 Things Your Dog Would Tell You..
My life is likely to last 10 to 15 years. Any separation from you will be painful: remember that before you get me.
Give me time to understand what you want of me.
Place your trust in me- it is crucial to my well being.
Do not be angry at me for long, and do not lock me up as punishment.
You have your work, your entertainment,and your friends. I only have you.
Talk to me sometimes. Even if I don’t understands your words, I understand your voice when it is speaking to me.
Be aware that how ever you treat me, I will never forget.
Remember before you hit me that I have teeth that could easily hurt you, but I choose not to bite you because I love you.
Before you scold me for being uncooperative, obstinate, or lazy, ask yourself if something might be bothering me. Perhaps I might not be getting the right food, or I have been out too long, or my heart is getting too old and weak.
Take care of me when I get old; you too will grow old. Go with me on difficult journeys. Never say: “I cannot bear to watch” or “Let it happen in my absence.” Everything is easier for me if you are there, even my death.

10 Things Your Dog Would Tell You..

  1. My life is likely to last 10 to 15 years. Any separation from you will be painful: remember that before you get me.
  2. Give me time to understand what you want of me.
  3. Place your trust in me- it is crucial to my well being.
  4. Do not be angry at me for long, and do not lock me up as punishment.
  5. You have your work, your entertainment,and your friends. I only have you.
  6. Talk to me sometimes. Even if I don’t understands your words, I understand your voice when it is speaking to me.
  7. Be aware that how ever you treat me, I will never forget.
  8. Remember before you hit me that I have teeth that could easily hurt you, but I choose not to bite you because I love you.
  9. Before you scold me for being uncooperative, obstinate, or lazy, ask yourself if something might be bothering me. Perhaps I might not be getting the right food, or I have been out too long, or my heart is getting too old and weak.
  10. Take care of me when I get old; you too will grow old. Go with me on difficult journeys. Never say: “I cannot bear to watch” or “Let it happen in my absence.” Everything is easier for me if you are there, even my death.

(Source: shawnanana, via you-know-ill-be)

Notes
270436
Posted
6 months ago
mrcheyl:

Rest In Peace James Avery
You played the role of the stern but caring father that many of us looked up to and learned from. We thank you for gracing us with your presence for so many years, and we won’t soon forget you. Thank you

mrcheyl:

Rest In Peace James Avery

You played the role of the stern but caring father that many of us looked up to and learned from. We thank you for gracing us with your presence for so many years, and we won’t soon forget you. Thank you

(via annayhetaon)

Notes
145138
Posted
6 months ago